For years, I kept my daily life separate from my relationship with Mark and Tommy, even to the point of denying they were a problem for me. In my first experiences with therapy, I mentioned them as a matter of course while giving the family history, but insisted that my real problems lay elsewhere. In the meantime, however, there was a subterranean river of grief that would break through to the surface occasionally, surprising me for a spell before disappearing again. The water metaphor is an apt one, because when I finally accessed the grief, I did so through tears that seemed to have no end.
I remember clearly a scene at Tanglewood during my first summer there. I was just 18 and was between my first and second years of college. I had had a difficult time managing and masking my stage fright, but on one night in particular it broke through during a concert of the Fellowship Orchestra, when I felt so panicked that I abruptly rose from my seat among the violins and walked off the stage in the middle of the performance. Backstage I almost literally ran into a trombonist who had unsuccessfully tried to romance me earlier in the summer. We walked around the grounds while I poured out my anguish in a flood of shame and frustration, until my parents found me and my father took over. He told me that he and my mother had watched me struggling with this torment for years, and he urged me to give up.
Now in the American vocabulary, quitting is commensurate with failure, made all the more blameworthy when it is chosen. What’s more, being advised to quit meant that I would never know whether I might have succeeded in conquering my fear if I had persevered. So I struggled with the notion as we walked, the fork in the road between the easy way out and the valiant fight to the end. And then my parents drove me home, and I somehow was moved to dig out the family photo album, pictures of me and my brothers as we were growing up, and I cried over them for what seemed like hours, grieving for all that I had lost.
That night marked the beginning of my tears. For years thereafter I would cry over my brothers almost any time I was left alone. If I was on a bus, I would turn my face to the window and cry. If I was alone in my room, I would pace the floor and cry. I cried in therapy, I cried in bed at night, I cried wherever and whenever I was alone. There were thoughts that were guaranteed to trigger the tears, like the thought of how sad it was and how much I missed them. Sometimes I would dwell on a fantasy of my brother Tommy’s death, imagining a phone call, usually while I was in a large group of people. In my fantasy I would break down completely, finally relieved of the heavy burden of maintaining an appearance of functionality.
At some point I began to suspect that the grief was for myself and had little to do with the people my brothers actually were, but I could not make sense of that distinction until my mother told me that when she first learned of the diagnosis, particularly of the younger of the two, she grieved for herself, then grieved for them, and then finally grieved for me. As the sister my grief may have come third in line, but it still had a place, and so I continued to grieve for myself.
Along with the grief there were painful fantasies of what might have been. I would look at young men who seemed to be my brothers’ age and wonder what my life might have been like if these “normal” people had been my brothers instead of the ones I had. I imagined Another Laurel, the one who grew up in a normal middle-class American family, the family that was taken away from me. What would she be like? I understood enough to know that it was impossible to tell, but the question needled me nonetheless. The family I actually had appeared to live out its life under a cloud of sadness and isolation. What would it be like to live differently? Would I be like these carefree young people I saw around me? (although of course I had no real concept of what their lives were really like either).
There came a day when I was listening to an interview on the radio, about the complex emotions of parents of autistic children. I suddenly thought, “I’m done with that.” I wasn’t done with grief, but I was done with thinking things either could or should have been other than what they were. I may have been painfully slow about it, but I had finally passed through the earlier stages of grief into a grudging acceptance.